Category Archives: Cerebral Palsy

Ben’s Unique Form of Communication

Ben’s speech therapy during the time we were in Charleston was pretty intense.  We were still holding out great hope that Ben would begin to communicate using words.  Starting out everything was geared toward unlocking that part of his brain.  … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment

Advocate For Project Lifesaver International

I’m going to go off topic again today because of something that is happening now, not ten miles from my house.  A nine-year-old child with autism wandered away from his dad at a local park three days ago, and there … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment

Working on Ben’s Feeding Disorder

Ben’s therapy during our years in Charleston had three main focuses; gross motor, speech and occupational.  Ben’s occupational therapist at the Charles Webb Center worked diligently to take the recommendations from the barium swallow test he had before we left … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9, Uncategorized | Tagged , , , , | Leave a comment

The Charles Webb Center

The Charles Webb Easter Seal Center had been doing a marvelous job serving the Charleston disabled community for decades.  It was a perfect example of how privately run charities can serve the community much better than the government.  As the … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment

From Advocacy to Activism

Life for parents of special needs children is one of advocacy out of necessity. Each time we attend an IEP meeting or insist that a healthcare professional make us part of the decision-making team for our child’s care, we are being an … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9, Uncategorized | Tagged , , , , | 1 Comment