Category Archives: Cerebral Palsy

Working on Ben’s Feeding Disorder

Ben’s therapy during our years in Charleston had three main focuses; gross motor, speech and occupational.  Ben’s occupational therapist at the Charles Webb Center worked diligently to take the recommendations from the barium swallow test he had before we left … Continue reading

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The Charles Webb Center

The Charles Webb Easter Seal Center had been doing a marvelous job serving the Charleston disabled community for decades.  It was a perfect example of how privately run charities can serve the community much better than the government.  As the … Continue reading

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From Advocacy to Activism

Life for parents of special needs children is one of advocacy out of necessity. Each time we attend an IEP meeting or insist that a healthcare professional make us part of the decision-making team for our child’s care, we are being an … Continue reading

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“Benny Can You Hear Me?”

Once settled in Charleston, our first order of business with regards to Ben was the hearing aid consult.  Dennis and I  both entered into this with some degree of hesitancy.  Not because we couldn’t accept that our son had a … Continue reading

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Settling into our Life in Charleston

The next morning we met Ben’s new doctor for the first time, but it was as if he already knew Ben.  In addition to the volumes of medical records we had already sent to him, he had been in contact … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment