Tag Archives: disabilities

Advocate For Project Lifesaver International

I’m going to go off topic again today because of something that is happening now, not ten miles from my house.  A nine-year-old child with autism wandered away from his dad at a local park three days ago, and there … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment

Working on Ben’s Feeding Disorder

Ben’s therapy during our years in Charleston had three main focuses; gross motor, speech and occupational.  Ben’s occupational therapist at the Charles Webb Center worked diligently to take the recommendations from the barium swallow test he had before we left … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9, Uncategorized | Tagged , , , , | Leave a comment

The Charles Webb Center

The Charles Webb Easter Seal Center had been doing a marvelous job serving the Charleston disabled community for decades.  It was a perfect example of how privately run charities can serve the community much better than the government.  As the … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment

“Benny Can You Hear Me?”

Once settled in Charleston, our first order of business with regards to Ben was the hearing aid consult.  Dennis and I  both entered into this with some degree of hesitancy.  Not because we couldn’t accept that our son had a … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment

Settling into our Life in Charleston

The next morning we met Ben’s new doctor for the first time, but it was as if he already knew Ben.  In addition to the volumes of medical records we had already sent to him, he had been in contact … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment