Tag Archives: special needs

Working on Ben’s Feeding Disorder

Ben’s therapy during our years in Charleston had three main focuses; gross motor, speech and occupational.  Ben’s occupational therapist at the Charles Webb Center worked diligently to take the recommendations from the barium swallow test he had before we left … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9, Uncategorized | Tagged , , , , | Leave a comment

The Charles Webb Center

The Charles Webb Easter Seal Center had been doing a marvelous job serving the Charleston disabled community for decades.  It was a perfect example of how privately run charities can serve the community much better than the government.  As the … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment

From Advocacy to Activism

Life for parents of special needs children is one of advocacy out of necessity. Each time we attend an IEP meeting or insist that a healthcare professional make us part of the decision-making team for our child’s care, we are being an … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9, Uncategorized | Tagged , , , , | 1 Comment

A Parent’s Worst Nightmare

Today I’m going to fast forward twenty years to address a topic that has come to the forefront in recent local news. It’s the story of the continued abuse of an autistic boy at the hands of two Bedford County Virginia … Continue reading

Posted in Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs | Tagged | 2 Comments

“Benny Can You Hear Me?”

Once settled in Charleston, our first order of business with regards to Ben was the hearing aid consult.  Dennis and I  both entered into this with some degree of hesitancy.  Not because we couldn’t accept that our son had a … Continue reading

Posted in Cerebral Palsy, Cerebral Palsy, Disabilities, Intellectual Disabilities, Intellectual Disabilities, Special Needs, Trisomy, Trisomy 9, trisomy9 | Tagged , , , , | Leave a comment